Consumers have a right to their genomes

Personal Genomics: Access Denied?

Consumers have a right to their genomes.

By Misha Angrist

Technology Review


In April, a startup company called Navigenics threw a swanky 10-day celebration in lower Manhattan to launch its highly publicized personal-genomics service, which offers genetic risk assessments for 21 complex health conditions--such as heart attack and diabetes--that are partly mediated by multiple genes. (I received complimentary genotyping from Navigenics; it normally costs $2,500.) Unbeknownst to attendees, the New York State Department of Health had sent a warning letter a few days earlier to the company and 22 others that offer similar products, telling them that they needed a permit before they could sell their services. New York-based party goers would be unable to partake in Navigenics' testing.


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More info:

"Letting the Genome Out of the Bottle—Will We Get Our Wish?"
By David J. Hunter, Muin J. Khoury, and Jeffrey M. Drazen
New England Journal of Medicine, January 10, 2008

Social Networking Hits the Genome

Article published at Technology Review by Emily Singer

If you've ever wanted to know just exactly how much DNA you share with your ridiculously tall brother or doppelganger best friend, you'll soon be able to find out. 23andMe, a personal genomics startup in Mountain View, CA, is about to unveil a new social-networking service that allows customers to compare their DNA. The company hopes that the new offering will encourage consumers to get DNA testing, potentially creating a novel research resource in the process.

"I think the idea of social networking has untapped potential," says George Church, a pioneer in genomics at Harvard Medical School in Boston and a member of 23andMe's scientific advisory board. "The idea has precedence in patients like me, people who have been enabled to find one another by their disease. Here, people can find each other by their alleles [or genetic variations]."

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www.yourstreet.com : mapping news

Text Source: TechnologyReview by Erica Naone

A new startup called YourStreet is bringing hyper-local information to its users by collecting news stories and placing them on its map-based interface, down to the nearest street corner. While there have been many companies that combine information and maps, YourStreet is novel in its focus on classifying news by location. (See "A New Perspective on the Virtual World.")

When a user opens the site, it detects her location and shows a map of that area, stuck with pins that represent the locations of news stories, user-generated content called conversations, and people who have added themselves to the map. The user can zoom in or out of the map or look at another location by entering a place name or zip code into a search bar. CEO and founder James Nicholson says that what sets YourStreet apart is its extensive news service: the site collects 30,000 to 40,000 articles a day from more than 10,000 RSS feeds, mostly from community newspapers and blogs. "We're not relying on the users to provide us with articles," Nicholson says. The stories featured on the site aren't of a specific type, and users will find the locations of murders marked alongside the locations of upcoming music shows. Stories featured on the site are teasers, and, if a user clicks to read further, she will be directed back to the source of the information.

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Brain Sensor for Market Research

Brain Sensor for Market Research

Article published at Technology Review by Kate Greene

Market researchers have long sought people's assessments of not-yet-released advertisements and products. But when people recall how they felt during a commercial, for instance, they often can't accurately describe what their reactions were at each moment in the 30-second spot. Now a San Francisco startup called Emsense claims that it has the tools needed to monitor a person's true reactions during an entire commercial or video game.

The company has developed a sensor-laden headset that tracks brain activity using a single electroencephalography sensor (EEG) at the forehead, and other sensors that monitor breathing rate, head motion, heart rate, blink rate, and skin temperature--all of which can be indicators of whether a person is engaged or excited. In addition, says Hans Lee, chief technology officer at Emsense, his team has built proprietary algorithms that find meaning from the data collected by the sensors. Founded in 2004, the company was originally developed to build an EEG-based video-game controller. (See "Connecting Your Brain to the Game.") Recently, though, the team found that using its technology for market research is more lucrative. And, as the political season ramps up, the company is testing its system internally on campaign ads.

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Finding Yourself without GPS

Finding Yourself without GPS

by Kate Greene

Text Source: Technology Review

Google's new technology could enable location-finding services on cell phones that lack GPS.

As more mobile phones tap into the Internet, people increasingly turn to them for location-centric services like getting directions and finding nearby restaurants. While Global Positioning System (GPS) technology provides excellent accuracy, only a fraction of phones have this capability. What's more, GPS coverage is spotty in dense urban environments, and in-phone receivers can be slow and drain a phone's battery.

To sidestep this problem, last week Google added a new feature, called My Location, to its Web-based mapping service. My Location collects information from the nearest cell-phone tower to estimate a person's location within a distance of about 1,000 meters. This resolution is obviously not sufficient for driving directions, but it can be fine for searching for a restaurant or a store. "A common use of Google Maps is to search nearby," says Steve Lee, product manager for Google Maps, who likened the approach to searching for something within an urban zip code, but without knowing that code. "In a new city, you might not know the zip code, or even if you know it, it takes time to enter it and then to zoom in and pan around the map."

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Evolving Privacy Concerns

Text Source: Evolving Privacy Concerns by Erica Naone. Technology Review

Facebook user Sean Lane bought a special gift for his wife. But his secret plans were ruined when information about his purchase was published through the social-networking site's new advertising system, Beacon.

Privacy concerns surfaced shortly after Beacon launched a month ago, prompting the activist group MoveOn, for example, to start a Facebook group protesting Beacon and to organize an online petition.

Stories such as this have many users concerned about their privacy. Last week, Facebook founder Mark Zuckerberg issued an apology and released a control that lets users turn off the system. But last weekend, experts at Yale Law School's symposium on reputation economies in cyberspace said that Facebook's privacy woes may not be over.

Beacon works by making use of partnerships that Facebook has formed with other websites, including Blockbuster and the New York Times.

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Your Personal Genome

Text source: Technology Review

A new wave of products targeting the blossoming personal-genomics industry has recently become available. The first commercial whole-genome sequencing service was launched last week by startup Knome, based in Cambridge, MA. (See "Get Your Genome Sequenced for $350,000.") Three other companies--deCode Genomics, based in Iceland; and the much-hyped startups 23andMe and Navigenics, both based in California--recently announced consumer services for genome-wide DNA analysis. While the technologies and business strategies of the companies vary, they all aim to give consumers a picture of their genetic risk for disease.

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Sociology at Microsoft

Image source wikipedia. Nicolas de Fer: Veue de Constantinople, Paris 1696, from: Les Forces De L'Europe, Ou Description Des Principales Villes, 8 / 23

Interview published at Technology Review

Marc Smith, the senior research sociologist at Microsoft Research, believes that now is a good time to practice his trade. Thanks to the Internet, there is unprecedented access to sociological data. And thanks to computers, sociologists are better able to sift through that data, find trends, and test models.

At Microsoft, Smith uses public Internet data to look at the social phenomenon of online communities, and he tries to make them better for people and better for business. He recently gave a presentation regarding his work at Microsoft's TechFest in Redmond, WA, an annual event at which Microsoft researchers from around the world share their latest work. Technology Review caught up with Smith to ask him about the field of cybersociology.

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Using the Internet Anonymously?

Using the Internet Anonymously?

published at Technology Review By Kate Greene

New open-source software by IBM could let people minimize their digital footprints, potentially curbing online fraud

Think about the last time you bought a DVD, booked a flight, rented a car, or signed up for a service or newsletter on the Internet. At some point, you had to fill out a form that asked for a lot of personal information. While it's a hassle unto itself, filling out forms can lead to a bigger problem: each time you give out your information, you provide an opportunity for your information to be picked off by identity thieves.

As more services migrate online, and as tactics of identity thieves become more sophisticated, people will need better ways to manage their information, says Nataraj Nagaratnam, chief architect of identity management for IBM Tivoli.

Nagaratnam and other IBM researchers have developed open-source software that they think can help. Called Identity Mixer (Idemix), the digital identity management software lets people make online transactions--from filling out forms to purchasing plane tickets--without disclosing personal information. The software lets a person use artificial identity information, in the form of digital "tokens," to make online transactions. Using these encrypted tokens, which are issued by trusted sources such as the Department of Motor Vehicles (DMV) or a bank, a person can effectively be anonymous to Web services such as Amazon.com or Expedia, never giving out his or her information.

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Links:

IBM Privacy Research Institute